If you can wrap your head around it, “Can I touch your arms?” is actually relatively common and almost never comes from children. Grown adults! Imagine!
I had plenty of time to prepare for the blindness that would creep in slowly during my 20s, first eradicating my nighttime and peripheral vision and eventually, in my 30s, my central vision.
cerebral palsy
“What’s the matter? Did you hurt your leg or something?” he asks. “No, I have Cerebral Palsy,” I answer.
I wondered if trashing my appearance was just his way of covering up his discomfort with the fact that I use a wheelchair, but he was certainly persistent in describing the things he considered to be flaws beyond my disability.
Bumped into something? Tripped? Picked up something heavy, like my ten-pound Shih Tzu? That’ll be three hours on the couch with an ice pack.
degenerative disease
I can't help thinking that if I don't mark things off my bucket list right now, I probably won't be able to ever do them again.
There is room for bodies like mine to be gazed at for reasons other than difference.
rachelle friedman
american girl
When my sister expressed her disappointment at yet another American Girl whose story differed so drastically from hers, I decided that for once: I could help her.
I don’t want you to feel sorry for me as the poor, young, disabled girl. I don’t want you to look at me as this inspiring hero. I am neither of these things.
disability rights
To be a disabled child, or a disabled adult who needs supportive care, is to know that your life is literally in the hands of the people you rely on to love and care for you. And those people may well think that murdering you would be doing you a favor.
chronic illness
When you’re young and you have issues with your mobility that aren’t obviously signposted by something visible like crutches or a cast, it brings you up against some fairly unpleasant attitudes.
Sometimes I wonder how I could have been so oblivious to the fact that proper treatment for pain is, well, not a bad thing.
Don't whisper. Also don't shout. And if you... speak... like... this... I will punch you.
The ADA prevents anyone from directly questioning me about it. But I always choose to. Let me tell you why.
disney world
HAVE YOU BEEN OUTRAGED BY THIS YET? Unfortunately, you're probably angry for all the wrong reasons.

May 15, 2013 at 4:30pm | 150 comments

My severe hearing loss has certainly not helped my career.
I struggle to grasp how much awareness could actually be raised by changing my Twitter userpic to the Wishbone Day logo for 24 hours.
Today is Blogging Against Disablism Day, an event organized to explore ableism/disablism and their larger social impacts worldwide. Disability hate crimes are just one of the many issues faced by the disability community.
There are a few topics that, as a general rule, I just refuse to discuss on the Internet. Assisted suicide/right-to-die is usually one of them.
There are days that the pain is so bad that I pray for sleep and I pray that I never have to wake up again.

Feb 26, 2013 at 1:30pm | 51 comments

how not to be a dick
There’s no need for you to speak more loudly and slowly, enunciate more, or mime things when you’re speaking to me